Blog

Musings on Living and Laughing with Cystic Fibrosis

Exercise Really Is Medicine

It was a little over a month ago that I lay on my weight bench in the garage with tears of frustration streaming down my face.  I had just completed a 15 minute "workout" consisting of a few unweighted lunges, some hip bridges, and 3 sets of 5 reverse abdominal curls....

read more

Saline Chronicles: The Dreaded C Word

  I have a pet peeve. It is the word "compliance." This word is thrown around quite a bit in CF circles, especially among medical professionals.  It is used frequently in research papers, where there is an understanding of what it means.  Physicians and other...

read more

The Key To The Comeback: Small Wins

So far, 2014 has not been my favorite year. Three hospitalizations in four months is a personal record that I do not want to break.  But, the good news is that I have learned quite a bit about "comebacks." I am writing this as I walk on a treadmill, sucking on a...

read more

It’s Not Melanoma If You Can Rub It Off

I worry too much.  Perhaps a reasonable person would say I have a right to do so, but nonetheless, it is pointless and it pisses me off.  It probably comes with the territory of being an "old CF survivor," as I have been called.  Fifty-three is not exactly "old" in...

read more

Saline Chronicles: How Not To Train For A Half-Marathon

I was scheduled to walk the San Francisco Rock-n-Roll Half-Marathon last weekend.  Unfortunately, life had other plans for me and now I have a PICC in my arm to deliver antibiotic nectar to my lungs, as I ended up with pneumonia 5 days before the race.  Sigh.  Such is...

read more

CF 2.0: Living Life As A Pariah

I've already ranted here about a new Cystic Fibrosis Foundation (CFF) policy, infamously termed the "one person rule."  If you don't want or have time to ready the previous post, here is the policy in a nutshell: If you have CF and are attending an outdoor event...

read more

Julie Desch

JulieDesch@gmail.com

}