by Julie Desch | Feb 1, 2014 | aging, cystic fibrosis, home IV's, hospital stays
These are the last words I will utter about the month referred to above. After this, I shall erase this time from my memory and speak of it no more. I should have known. It had been nineteen months since my last confession, I mean, hospitalization due to...
by Julie Desch | Jul 6, 2011 | cystic fibrosis, general, health obstacles, home IV's, quality of life, Wellness
There is good news and bad news about getting old with cystic fibrosis. The good news is that I am getting old with CF! How great is that? Although it is happening to more and more people as medical care gets better and the median age of survival creeps upward, it...
by Julie Desch | Apr 13, 2011 | BOOT CAMP, cystic fibrosis, general, home IV's, motivation, quality of life, Wellness
Well, it has been a very long time, hasn’t it? You may wonder where I’ve been…why no words of wisdom from the now 50-YEAR-OLD Julie? The reason is that it has been a winter from Hell, and I will just leave it at that because my mother (RIP) always...
by Julie Desch | Aug 24, 2010 | cystic fibrosis, exercise, home IV's
Try out these exercises with your ball. They are great for your legs and abs! And don’t worry, you can do them with a PICC in your...
by Julie Desch | Aug 21, 2010 | exercise, home IV's, Wellness
When you are addicted to weights as I am, those weeks with a PICC line can be a pain the the butt, and psyche. In order to not get completely depressed (i.e. to stay sick-but-getting-less-sick and happy), I always at least walk every day, and then as the magic juice...
by Julie Desch | Apr 23, 2010 | cystic fibrosis, health obstacles, home IV's, MRSA, positive psychology
Rule Number One that I hear myself telling people who are bummed out about their illness, whatever it is, is to remember, “there is more right with you than wrong with you.” And that’s true, right? Think about it, by some miracle you are here on this earth,...
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