by Julie Desch | May 12, 2014 | cystic fibrosis, health obstacles, positive psychology, Wellness
I have a pet peeve. It is the word “compliance.” This word is thrown around quite a bit in CF circles, especially among medical professionals. Â It is used frequently in research papers, where there is an understanding of what it means. Â Physicians...
by Julie Desch | Oct 2, 2013 | general, happiness, motivation, quality of life, Wellness
I recently heard Carol Dweck, a research psychologist at Stanford, give a talk about her book, Mindset: The New Psychology of Success, and the number of “ah ha” moments I had prompted me to immediately order the book. Â Dweck’s research interest is...
by Julie Desch | May 1, 2013 | cystic fibrosis, exercise, health obstacles, motivation, Wellness
I know…it’s not a word. Â But it should be. Â Especially if you have CF and you deal with the ups and downs of exacerbations followed by hospitalizations and the frustrating loss of all of your hard-earned fitness gains, there needs to be a unique word to...
by Julie Desch | Mar 6, 2012 | exercise, quality of life, Wellness
I have a tad bit of trepidation writing this post. Â The last thing I want to do is tell people with CF to take it easy when it comes to exercise, but this is indeed what I am about to do. Â It may be a controversial topic…and that’s ok. Despite being a...
by Julie Desch | Jul 6, 2011 | exercise, general, Wellness, workout tips
In a previous post I discussed my version of the Perfect Workout, which consisted of eight steps. The first step is to deal with soft tissue abnormalities that lead to pain and/or poor movement patterns. Here, I discuss this further. Unless you are a newborn, when...
by Julie Desch | Jul 6, 2011 | cystic fibrosis, general, health obstacles, home IV's, quality of life, Wellness
There is good news and bad news about getting old with cystic fibrosis. The good news is that I am getting old with CF! How great is that? Although it is happening to more and more people as medical care gets better and the median age of survival creeps upward,...
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