by Julie Desch | Feb 15, 2014 | aging
Thirty years ago, I began the process of leaving my family behind, as acceptance letters to medical schools far away from my home state of Nebraska began to arrive in my mailbox. Those remaining in NE at the time included my parents and my sister, Kathy, who was...
by Julie Desch | Feb 3, 2010 | CFTR, quality of life, Vertex
It’s been a weird day. I had planned to write about meditation and why having a “lung disease” doesn’t mean you can’t meditate. This was something I used to actually believe, since beginning meditators are often instructed to...
by Julie Desch | Jul 16, 2008 | cystic fibrosis, exercise, P90X
I am 47 and have garden variety, homozygous delta F508 CF. While it is true that I probably benefit from a helpful modifier gene or two, I am convinced that the reason I am so healthy today is that I have exercised regularly and vigorously my entire adult life. As I...
by Julie Desch | Jun 15, 2008 | cystic fibrosis, exercise
It’s a hot, summer day last August. The “world’s champion†(not really, but we thought so) Frisbee dog, my 13 year old Border Collie, Cisco, is out in the back yard chasing squirrels with his two schnauzer brothers-from-another-mother, Wiley and Jaxon. This is...
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