by Julie Desch | Feb 3, 2010 | CFTR, quality of life, Vertex
It’s been a weird day. I had planned to write about meditation and why having a “lung disease” doesn’t mean you can’t meditate. This was something I used to actually believe, since beginning meditators are often instructed to...
by Julie Desch | Dec 14, 2009 | CFTR, cystic fibrosis, quality of life, Vertex, Wellness
Up until very recently, therapy for CF has been directed at correcting the consequences of the defective CFTR protein (thinning mucus, improving clearance, treating infection, calming inflammation, improving nutrition, etc). Yes, when the gene was discovered in...
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