by Julie Desch | Nov 16, 2021 | general
Maybe you know the sound of the “CF cough.” It is wet and has a gurgling quality. And when you have seen with your own eyes what is actually doing the gurgling, it can be a repulsive sound. It can cause you to gag, because you know at a cellular level what the sound...
by Julie Desch | Nov 11, 2021 | general
Jean was a traditional mom. Born 98 years ago in a small town in Nebraska, she was never one to buck convention. When she married her high school sweetheart, she converted to Catholicism to please her husband, and proceeded to churn out babies. I was the last of...
by Julie Desch | Nov 11, 2021 | general
Library Days were the best part of summer. This wasn’t just because I loved to read and the excursion to the city library resulted in six (the maximum number allowed) new books. It was more than this. It was my own version of therapy that was necessitated due to the...
by Julie Desch | Nov 9, 2021 | general
No doctor in my home town knew how to take care of children with cystic fibrosis. This is not surprising. It was the 1960’s, and only very recently had there been a diagnostic test discovered which could indicate the cause of the child’s problems, a disease recently...
by Julie Desch | Jun 19, 2014 | cystic fibrosis, general
There is a movement afoot. Â It goes by a few names; quantified self, biohacking, and biologging are a few. Â The quantified self website has a tagline which sums up the purpose of this movement quite well, “self knowledge through numbers.” By using...
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