A BIG, BIG DAY

by | Jun 24, 2014 | CFTR, cystic fibrosis

Just as we all remember where we were and what we were doing when JFK died, I remember where I was in 1989 when I learned that the gene coding for CF had been identified.  It was a BIG day. Everyone in the CF world was convinced that a cure was just around the corner....

The Beginning of the End?

by | Feb 3, 2010 | CFTR, quality of life, Vertex

It’s been a weird day.  I had planned to write about meditation and why having a “lung disease” doesn’t mean you can’t meditate.  This was something I used to actually believe, since beginning meditators are often instructed to...

Sick and Happy Takes on New Meaning

by | Mar 17, 2009 | general

I am going to be the first ever to blog about the negative effects of happiness in CF.  The following is an excerpt from an article from Stanford Medicine, published yesterday (the emphasis is mine).  In brief, the article reports the discovery of an exaggerated white...
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